Grand Mal Seizures: Our Terrifying Experience(s)

I got diagnosed at 4

One thing. You are married to the man. I'm sure that his having a seizure frightened you. It does most people. However, you should understand that while you were there and helping him through the seizure, the seizure happened to your husband, not to you. So, it would be nice if you would allow your husband to get a word in edgewise about how the seizure affected him. Granted, he was unconscious for most of the seizure and therefore, he won't be able to describe the seizure itself, and what happened to his body and how the seizure manifested itself. You can tell us what happened with your husband and he should be there to be able to talk about how he felt. Both before the seizure, if he can remember that, and certainly, after the seizure, how he felt physically and even emotionally, what did he feel or think about when he woke up. He is sitting right there, next to you, and every time he attempts to say something about the seizure, you shut him down. I'm a chatterbox also. Having epilepsy myself, I can only imagine how the seizure frightened you. I don't blame you for still being a little bit "wired" However, it's 4:26 out of 25:00 and I don't want to watch the rest of the video, if your husband is not going tobe able to talk about his seizure . He needs to be able to do that. Both of you are helping others, who are in the same boat as you are. However, if your husband can speak to we patients who have epilepsy, it would be extremely helpful for us to hear from him, whatever he wants to share with us, and, whatever he is able to share with us. We may not have the same type of seizure. However, it is the feelings about having a seizure that most of us would be interested in. Because, we also have had feelings about seizures, and it is not easy for many people to have a seizure happen, and all the medical people are interested in, is if the seizure is over. Emotional First Aid is also needed. Perhaps, even more than the physical First Aid. However, it is given short shrift. And it's my belief, that if we don't have any opportunity to talk to another person who has epilepsy/seizures, that can allow bad feelings about the disability itself, and perhaps ourselves, to arise, and maybe fester. The opportunity to hear from otherswho have epilepsy and have seizures, is ta rare gift. A gift to help lessen those feelings and allow them to dissappaite. Thank You for posting this.

I twitch before I go and my husband uses the lights on no ones home to describe me before and after

Dam I go threw this I beat up my tongue bad every time

Hi guys! First I’d like to say E-A-G-L-E-S EAGLES. I married a man from bucks co. PA a very huge eagles fan and I can’t wait to show him your video. I want to thank you for sharing your experience. You made me tear up when you spoke about what you witnessed during your husbands seizure and how scared you were.
My husband and 3 year old witnessed my 1st seizure ever last week Wednesday feb 13th. We live in FL so I didn’t lose my drivers but Doctors don’t want me to drive for 6 months. I have started taking prescription keppra which has those nasty side effects. I will be looking into cbdoil as well thanks for the info. I had the 1st seizure at home, hubs called 911, then I had another seizure at the hospital. I bit my tongue really bad. MRI and EEG came back normal. Hoping to get into the neurologist soon, cause they can okay me driving prior to the 6 month mark. I’m on the wait list cause they are out til May!!! Hope you are both well. Take care.

Hydrate Hydrate Hydrate! I'm Hydrating always. Thank God for you Brie! Give us an update in a month or so. Love you guys!